Teddington Trust needs your help for XP children


A Donside woman has set up a charity to help support her nephew with a rare genetic condition - and she needs your help.

Rebecca Stewart, from Cushnie ,got the ball rolling on The Teddington Trust to help her four year old nephew Eddison Miller.

He is one of the youngest people to have been diagnosed with rare and incurable genetic condition xeroderma pigmentosum (XP), which makes him completely intolerant to ultraviolet (UV) rays.

The condition affects fewer than 100 people in Britain and 1000 around the world - and makes Eddison 10,000 times more likely to develop skin cancer.

At just three months old, Eddison started displaying symptoms of being extremely sensitive to both natural and artificial light.

Mum Nicola, said: “We looked for ways to help educate Eddison in understanding his condition...so I started writing his own Little Ted story to help us introduce the concepts to him.

“Following positive feedback from the UK National XP Clinic at St Thomas`s Hospital, London we have set ourselves a goal to provide a copy free of charge to all children within our reach affected by XP.

“We are still around £22,000 short of our target to be able to send out 300 of the Little Ted packs.”

Theyinclude a physical Little Ted character for the children to engage with as an extension of the book series. To find out more, visit www.teddingtontrust.com/