Dr Nanette Milne, Scottish Conservative MSP for the North East had her lung function tested to see how their result compared with someone with Cystic Fibrosis to highlight the devastating impact of the disease.
The event, organised by the Cystic Fibrosis Trust, indicated to parliamentarians first-hand how Cystic Fibrosis damages the lungs. The average lung capacity for an adult with Cystic Fibrosis is just 65.1% compared to someone without Cystic Fibrosis that would achieve results of 80% or more.
Cystic Fibrosis is a progressive disease with the average age of death for a person with CF of around 29 years old. Despite this, because of advances in treatment and access to clinical expertise, many people with CF are living longer than ever before.
Dr Nanette Milne, Scottish Conservative MSP for the North East said:“Having my lung function tested has shown me how much more effort people with CF have to make just to take a breath. I can see how arduous the burden of treatment is to try to stop lung function from declining. It highlighted to me just what a battle it is living with this condition that claims two young lives a week”.
Cystic Fibrosis is one of the UK’s most common inherited conditions, affecting over 9,000 babies, children and adults. CF is caused by a faulty gene that causes the lungs, digestive system and pancreas clogging them with a thick sticky mucus.
More information can be found at www.cfweek.org.uk